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Useful Links

General

Bone and Joint Infections Treatment Plan (PDF 47KB)
Explains what osteomyelitis and septic arthritis are and covers treatment including sheduling clinic appointments at Children’s, giving medicines, side effects of medicines, lab tests needed and warning signs to watch for. Also available in Spanish.

Cast Care: Instructions for Patients and Families (PDF 51KB)
Discusses types of casts, how to take care of them and bathing instructions. Also available in Spanish.

Constipation After Surgery (PDF 33KB)
Offers four tips for preventing constipation after surgery. Addresses stool softeners and when to call the doctor. Also available in Spanish.

Global-HELP
The Global-HELP Organization is devoted to making health-care information accessible worldwide. The publications section of this Web site includes many resources for parents and health-care providers.

Pain Control for Short-term Acute Pain (PDF 215KB)
Explains how to control your child’s pain after surgery, medical procedure or injury. Also available in Spanish, Russian and Vietnamese.

Spica Cast Care (PDF 64KB)
Describes how to care for a child after a spica cast is put on. Discusses moving, lifting, clothing, bathing, meals, odor, bathroom, sleep, itching, leaving your child, travel, activity, keeping a spica cast clean and dry and when to call the doctor. Also available in Spanish, Russian and Vietnamese.

How to Move Your Child in a Hip Spica Cast (PDF 35KB)
A flyer with instructions on how to transfer a child with a hip spica cast from bed to wheelchair.

How to Transfer Your Child in a Hip Spica Cast Using the Two Person Stand-Pivot Technique (PDF 287KB)
Step-by-step instructions on how to safely move your child from bed to wheelchair (and back again) using the help of two people. Discusses use of transfer belt.

Using Crutches (PDF 104KB)
A flyer describing the correct and safe use of crutches. Discusses how to walk with crutches, going up and down stairs, and sitting down and getting up from a chair. Also available in Spanish.

Achondroplasia

Genetics Home Reference from the National Library of Medicine
Provides an overview of achondroplasia, including what it is, how common it is, causes, how it’s passed on and other names for achondroplasia. Includes links to more information.

Charcot-Marie-Tooth Disease

Muscular Dystrophy Association
Learn about the types of Charcot-Marie-Tooth disease, causes, treatment and whether it runs in families. This Muscular Dystrophy Association publication includes photos and illustrations.

Medline Plus Medical Encyclopedia
This entry from the Medline Plus Medical Encyclopedia defines cavus foot and gives an overview of symptoms, treatment and complications.

American Academy of Orthopaedic Surgeons
This overview of clubfoot includes a description, symptoms and treatment options.

The Ponseti Method for Clubfoot Correction: Information for Parents (PDF 183KB)
This flyer details one way that clubfoot is treated in babies. The Ponseti Method includes casting, an office procedure, a brace and follow-up. Pie Zambo: El Método de Ponseti (PDF 1.5MB)

Metatarsus Adductus (PDF 42KB)
Discusses in-toeing, which children get metatarsus adductus (hook foot) and its cause. Covers treatments including observation, massage and casting.

Tibial Torsion (PDF 50KB)
Discusses in-toeing, which children get tibial torsion (twisting of the lower leg bone), cause, prognosis, treatments and determining the need for surgery.

What Parents Should Know About Flatfeet, Intoeing, Bent Legs and Shoes for Children (PDF 445 KB)
Easy-to-understand information about flatfeet, intoeing, bent legs and shoes for children. This flyer includes illustrations.
Lo Que los Padres Deben Saber Acerca de los Pies Planos, Piernas Arqueadas y Zapatos para Niños Spanish (PDF 442KB)

Developmental Dysplasia of the Hip (DDH)

American Academy of Orthopaedic Surgeons
This overview of DDH includes a description, symptoms and treatment options.

Dwarfism

Little People of America Medical Resource Center
Provides a list of types of dwarfism, medical conditions and complications that exist within the types of dwarfism, frequently asked questions and “ask a question” service.

Kids Health
Covers what dwarfism is and what it isn’t, causes, types, complications, treatments and how to help your child with dwarfism.

Elbow Fractures in Children

American Academy of Orthopaedic Surgeons
Get information on the types of elbow fractures, symptoms and treatment options.

Femoral Torsion

Femoral Torsion (PDF 49KB)
Defines femoral torsion and discusses which children get it, cause, treatment — including what doesn’t work and if surgery is needed.

Knee Injury

Arthroscopy in Children and Teenagers (Ages 8 to 18)
This page from UW Medicine, Orthopaedics and Sports Medicine describes the parts of the knee and a surgical procedure that is often used to repair knee injuries in children and teens.

Surgery for Anterior Cruciate Ligament Deficiency in Children and Young Adults
This page from UW Medicine describes anterior cruciate ligament (ACL) deficiency, explains how the diagnosis is made and briefly covers treatment options.

Limb-sparing Surgery

Seattle Cancer Care Alliance
Sarcoma is a form of cancer that begins in the bone, soft tissues or connective tissues. Treatment of sarcoma can include surgery to remove some of the bone in a child’s arm or leg. This site offers a short overview of limb-sparing surgery related to treating sarcoma in children.

Parents Against Cancer
This Web page provides detailed information about limb-sparing surgery, including who may be eligible, what happens before surgery, pain control after surgery, complications and pathology. Includes a glossary of words used when talking about limb-sparing surgery.

Legg-Calvé-Perthes Disease

American Academy of Orthopaedic Surgeons
This overview of Legg-Calvé-Perthes disease includes a description, symptoms and treatment options.

Scoliosis

SpineKIDS.com
SpineKIDS.com promotes understanding of the care and treatment of scoliosis and provides a community that supports kids and families living with scoliosis. Their Web site features information about scoliosis, scoliosis stories from families, a message exchange, parent education and games.

iScoliosis.com
Medtronic, Inc. provides this Web site for people with scoliosis and their families. The site includes information about symptoms, causes and diagnosis, treatment, stories from patients, a glossary of terms and FAQs. It also features tips for children with scoliosis to use to talk to their parents about what they’re going through.

Spinal Fusion for the Treatment of Idiopathic Scoliosis in Children: Orthopedic Surgery to Treat Curvature of the Back in Children and Teenagers
UW Medicine, Orthopaedics and Sports Medicine provides an overview of a surgery that is used to treat scoliosis in some children.

American Academy of Orthopaedic Surgeons
Learn about scoliosis, who gets it, signs to look for and treatment options.

Syndromes

GeneTests
The GeneTests Web site is a medical genetics information resource funded by the National Institutes of Health. It was developed for health-care providers and researchers, but is of interest to some families as well. Learn what genetic testing is, find labs and clinics in your area that do genetic testing, view a glossary of terms used in medical genetics and more.